National Organization for Rare Disorders (NORD)

The National Organization for Rare Disorders (NORD) is a non-profit organization in the United States dedicated to supporting individuals with rare diseases. Rare diseases affect a small percentage of the population, making research and treatment development challenging. NORD provides resources, advocacy, and education to improve the lives of those affected. It connects patients, families, and healthcare providers, and works to raise awareness about rare conditions. Additionally, NORD promotes research and policy initiatives to enhance access to therapies and improve funding for rare disease research, ensuring that patients receive the support they need.