Rare Disease Day

Rare Disease Day is an annual global event held to raise awareness about rare diseases—conditions that affect a small percentage of the population. Many rare diseases are misunderstood, difficult to diagnose, or lack effective treatments. The day aims to highlight the challenges faced by patients and their families, promote research, and encourage policymakers to improve healthcare and support services. By increasing visibility, Rare Disease Day helps foster understanding, compassion, and advocacy for those impacted by these often overlooked conditions.