European Organization for Rare Diseases (EURORDIS)

EURORDIS, the European Organization for Rare Diseases, is a non-profit alliance representing patients with rare conditions across Europe. It works to improve research, healthcare, and policies for these often overlooked diseases. By connecting patient organizations, healthcare professionals, and policymakers, EURORDIS aims to raise awareness, promote faster diagnosis, and ensure better access to treatments. Its goal is to empower patients and foster a collaborative approach to addressing the unique challenges faced by those with rare diseases.