ALS Registry

The ALS Registry is a national database maintained by the Centers for Disease Control and Prevention (CDC) that collects information about people with amyotrophic lateral sclerosis (ALS), commonly known as Lou Gehrig's disease. The registry aims to enhance understanding of the disease, improve the quality of care, and support research efforts. By gathering data on patients, their symptoms, and treatments, the registry helps scientists and healthcare providers identify trends and develop better strategies for managing ALS. Its ultimate goal is to advance knowledge and find effective treatments for this challenging neurodegenerative condition.