CLN2 disease patient advocacy groups

CLN2 disease is a rare, inherited neurodegenerative condition caused by a deficiency in an enzyme needed to break down certain proteins in the body. Patient advocacy groups for CLN2 disease work to raise awareness, support families affected by the condition, and promote research for treatments. They provide resources, education, and community connections for patients and caregivers. These organizations also advocate for funding and policy changes to improve access to therapies and support services, aiming to enhance the quality of life for those impacted by CLN2 disease.