Beyond Batten Disease Foundation

The Beyond Batten Disease Foundation is a non-profit organization dedicated to raising awareness and funding for research into Batten disease, a rare and devastating genetic disorder that affects children's neurological development. The foundation supports affected families, promotes scientific research, and collaborates with researchers to find therapies and potential cures. By fostering community engagement and raising funds, the foundation aims to improve the lives of those impacted by this challenging condition and bring hope for future treatments.