Duchenne Registry

The Duchenne Registry is a specialized database that collects and organizes health information about individuals with Duchenne muscular dystrophy (DMD), a genetic disorder that causes muscle weakness and degeneration. The registry helps researchers, doctors, and families understand the disease better by tracking symptoms, treatments, and outcomes over time. By compiling this data, the registry aims to facilitate research, improve patient care, and ultimately advance the development of therapies for DMD. It plays a crucial role in connecting patients, families, and scientific communities to enhance knowledge and treatment options for those affected by this condition.