The Neurofibromatosis Network

The Neurofibromatosis Network is a nonprofit organization dedicated to supporting individuals and families affected by neurofibromatosis (NF), a group of genetic disorders that cause tumors to grow on nerves throughout the body. These tumors can lead to a variety of health issues, including skin changes, learning difficulties, and nerve problems. The organization provides education, advocacy, and research funding to improve understanding and treatment of NF. It also offers resources to help people manage their condition, connect with others, and advance scientific efforts toward better therapies and, ultimately, a cure.