Rare Disease Support Group

A Rare Disease Support Group is a community of individuals and families affected by uncommon medical conditions. These groups provide emotional support, share information, and advocate for better healthcare and research. Because rare diseases are less well-known, support groups help members connect their experiences, learn about available treatments, and raise awareness among the public and medical professionals. They play a vital role in reducing feelings of isolation, empowering patients, and driving efforts to improve diagnosis, care, and research for these uncommon conditions.