Fragile X Research Registry

The Fragile X Research Registry is a secure database that collects information about individuals with Fragile X syndrome, a genetic condition causing developmental delays and intellectual disabilities. It helps researchers understand the condition better, track the prevalence, and develop new treatments. Participants or their caregivers voluntarily share health details, which are kept confidential. Joining the registry can also connect families with clinical studies and support resources, ultimately advancing scientific knowledge and improving care for those affected by Fragile X.