AAT deficiency registries

AAT deficiency registries are specialized databases that collect information about individuals diagnosed with alpha-1 antitrypsin (AAT) deficiency, a genetic disorder affecting the lungs and liver. These registries help monitor disease patterns, track treatment outcomes, and facilitate research to improve understanding and management of the condition. They also provide valuable data for healthcare providers and researchers, aiming to enhance patient care, develop new therapies, and inform clinical guidelines. Participation in these registries supports ongoing efforts to better understand AAT deficiency and improve quality of life for those affected.