Von Willebrand Factor Registry

The Von Willebrand Factor Registry is a specialized database that collects information about individuals with Von Willebrand Disease (VWD), a genetic blood disorder that affects how blood clotting works. It helps doctors and researchers understand the diversity and characteristics of the condition, track treatment outcomes, and improve care. By gathering data from patients worldwide, the registry supports better diagnosis, personalized treatments, and advances in research to improve quality of life for those affected by VWD.