The Congenital Hand Differences Registry

The Congenital Hand Differences Registry is a specialized database that collects information about birth defects affecting the hands. Its purpose is to gather data from patients, families, and healthcare providers to better understand how these conditions occur, how they can be treated, and what outcomes patients experience. By compiling this information, researchers can improve care, develop new treatments, and identify patterns or risk factors. The registry supports physicians and families in making informed decisions and aims to enhance the quality of life for individuals with congenital hand differences through better research and resources.