Rare Diseases Act

The Rare Diseases Act is legislation aimed at improving the understanding, diagnosis, and treatment of rare diseases—conditions that affect a small percentage of the population. It encourages increased research, better healthcare resources, and policies to support patients living with these uncommon illnesses. The act often establishes programs for data collection, funding, and collaboration among medical professionals and researchers, ultimately striving to improve quality of life and access to care for individuals affected by rare diseases.