Rare Disease Clinical Research Network (RDCRN)

The Rare Disease Clinical Research Network (RDCRN) is a collaborative effort that brings together researchers, doctors, and patients to study rare diseases—conditions affecting a small number of people. Its goal is to improve understanding, diagnosis, and treatment options for these often misunderstood diseases. By sharing data and resources across multiple institutions, the RDCRN accelerates research, helping develop new therapies and providing vital support to patients and families affected by rare conditions.