Rare Disease Advocacy Network (RDAN)

The Rare Disease Advocacy Network (RDAN) is a collaborative platform that connects organizations, patients, researchers, and healthcare providers to raise awareness, share information, and promote policies for rare diseases—conditions that affect a small percentage of the population. Its goal is to improve diagnosis, treatment, and support for individuals living with these conditions by fostering communication and advocacy efforts across the community. RDAN helps ensure that rare disease issues gain the attention and resources needed to advance research and improve quality of life for patients and their families.