Rare Disease Act

The Rare Disease Act is legislation aimed at improving the understanding, diagnosis, and treatment of rare diseases—conditions that affect a small percentage of the population. It encourages research and development of therapies, enhances awareness, and supports policies to address the unique challenges faced by patients with rare diseases. By focusing on these less common conditions, the act seeks to ensure patients receive better medical care, resources, and attention that might otherwise be limited due to the rarity of their illnesses.