prion disease advocacy

Prion disease advocacy involves efforts to raise awareness, support research, and promote early diagnosis of diseases caused by misfolded proteins called prions, such as Creutzfeldt-Jakob disease. These rare, deadly conditions affect the brain, leading to rapid decline and no known cure. Advocacy groups work to educate the public and healthcare professionals, improve diagnosis methods, fund research for treatments, and support affected families. Their goal is to increase understanding, reduce stigma, and accelerate scientific progress toward prevention and therapies for prion diseases.