Patient Support Organizations

Patient Support Organizations are nonprofit groups that provide information, resources, and emotional support to people affected by specific health conditions. They often advocate for patients’ needs, promote research, and help individuals navigate treatments and healthcare systems. These organizations also create communities where patients and families can share experiences and find understanding. Their goal is to improve quality of life and ensure patients’ voices are heard in healthcare and research decisions. Overall, they serve as a valuable link between patients, caregivers, healthcare providers, and researchers.