orphan disease organizations

Orphan disease organizations are specialized groups dedicated to supporting and advocating for individuals with rare conditions, often called orphan diseases. These organizations raise awareness, fund research for new treatments, and provide resources and community connections for patients and their families. Because orphan diseases affect few people, these groups play a crucial role in bringing attention and advancing medical solutions that might otherwise be overlooked by larger medical research efforts. Their work helps improve diagnosis, treatment options, and quality of life for those with rare diseases.