Ohtahara syndrome awareness groups

Ohtahara syndrome awareness groups are organizations dedicated to informing the public and supporting families affected by this rare, severe neurological disorder. This syndrome causes persistent seizures and significant developmental delays from early infancy. Awareness groups aim to educate about the condition, promote research for better treatments, and provide emotional and practical support to families navigating these challenging circumstances. By increasing understanding, these organizations help foster community connections, advocate for advancements in care, and improve the quality of life for affected individuals.