National PKU Alliance

The National PKU Alliance (NPKUA) is a nonprofit organization dedicated to improving quality of life for individuals with phenylketonuria (PKU), a rare genetic disorder that affects how the body processes an amino acid called phenylalanine. The alliance funds research, advocates for better treatments and policies, and provides education and support to patients and families. Its goal is to advance treatments, increase awareness, and ultimately find a cure for PKU, enhancing health and well-being for those affected by the condition.