National Marfan Foundation

The National Marfan Foundation is a nonprofit organization dedicated to supporting individuals with Marfan syndrome, a genetic disorder that affects connective tissue, leading to potential issues with the heart, eyes, blood vessels, and skeleton. The foundation provides education, resources, and research funding to improve diagnosis, treatment, and quality of life for those affected. It also advocates for awareness and research to better understand the condition. By connecting patients, families, and healthcare providers, the foundation aims to foster a supportive community and promote advances in medical care.