National Ehlers-Danlos Society

The National Ehlers-Danlos Society is a nonprofit organization dedicated to supporting individuals affected by Ehlers-Danlos syndromes (EDS), a group of genetic disorders that affect connective tissue. These conditions can cause symptoms like hyperflexible joints, skin that stretches easily, and fragile blood vessels. The Society provides education, raises awareness, funds research, and advocates for better diagnosis and treatment options. Its goal is to improve quality of life for those with EDS and their families while promoting greater understanding of these complex disorders.