John J. Crowley

John J. Crowley is an American businessman and father known for his exceptional dedication as a parent of children with Pompe disease, a rare and serious genetic disorder that affects muscles. He became widely recognized after his journey inspired the 2009 film "Extraordinary Measures," highlighting his efforts to find treatments and support for his children. Crowley’s leadership in his family and involvement in medical advocacy have brought awareness to rare diseases, emphasizing perseverance and hope in the face of medical challenges.