Jesse's Journey

Jesse’s Journey is a Canadian charitable organization dedicated to raising awareness, providing support, and funding research for rare childhood genetic disorders, such as mucopolysaccharidoses (MPS) and Batten disease. It aims to improve the quality of life for affected children and their families by fostering community connection, advocating for access to treatments, and advancing scientific understanding. Through fundraising efforts and partnerships, Jesse’s Journey helps develop therapies and resources tailored to these rare conditions, creating hope and support where it is most needed.