International Neuromuscular Research Registry

The International Neuromuscular Research Registry (INMR) is a global database that collects information from individuals with neuromuscular disorders, such as muscular dystrophy or ALS. Its goal is to facilitate research by providing researchers access to patient data, including medical histories and genetic information. This helps researchers understand these conditions better, develop new treatments, and improve patient care. Participation is voluntary and confidential, ensuring patient privacy while advancing scientific knowledge to benefit those affected by neuromuscular diseases.