International Consortium of Patient Registries

The International Consortium of Patient Registries (ICPR) is a global organization that brings together various health registries—collections of information about patients with specific diseases or conditions. Its goal is to improve medical research and patient care by sharing and harmonizing data across different countries and organizations. This collaboration helps researchers better understand diseases, develop treatments, and monitor patient outcomes on a worldwide scale, ultimately advancing healthcare and ensuring patients' data is used responsibly and effectively.