Familial Aortopathy Registry

The Familial Aortopathy Registry is a specialized database that collects information about families affected by aortopathy, a genetic condition that weakens the aorta, which is the main artery in the body. The registry aims to understand how these conditions are inherited, track patient health and outcomes, and guide research into better treatments. By gathering data from families, researchers can identify patterns and risk factors associated with aortopathy, ultimately improving diagnosis and care for affected individuals and their relatives. It serves as an important resource for both patients and healthcare professionals.