European Organisation for Rare Diseases (EURORDIS)

EURORDIS, the European Organisation for Rare Diseases, is a nonprofit organization that connects patients, families, and researchers across Europe to improve the lives of those with rare diseases. It advocates for better healthcare, raises awareness, and promotes research to find better treatments and solutions. By uniting these communities, EURORDIS helps ensure that rare disease patients have a voice in health policy and access to quality care. Its goal is to foster collaboration and innovation, making progress possible for the millions affected by conditions that are often overlooked due to their rarity.