Ethical Guidelines for Human Biobanks and Genetic Research

Ethical guidelines for human biobanks and genetic research ensure that donors' rights and privacy are protected, and that research is conducted responsibly. They require informed consent, meaning donors understand how their samples will be used. These guidelines also emphasize confidentiality, preventing misuse of personal data. They promote transparency, fairness, and equitable access to benefits. Additionally, they address potential risks and ensure research aligns with societal values. Overall, these standards aim to balance advancing scientific knowledge with respecting individuals’ dignity and rights.