Childhood Neurodegeneration Study Group

The Childhood Neurodegeneration Study Group is a research organization dedicated to understanding and developing treatments for rare, progressive brain disorders that affect children. These conditions involve the gradual loss of nerve cells, leading to declining motor skills, cognition, and health. The group brings together scientists, clinicians, and families to study the causes, progression, and potential therapies for these complex diseases. Their goal is to improve diagnosis, develop new interventions, and ultimately find ways to halt or slow neurodegeneration in affected children.