Bill of Rights for Children with Myositis

The Bill of Rights for Children with Myositis is a guideline that ensures young patients receive respectful, informed, and compassionate care. It emphasizes the child's right to be involved in decisions about their treatment, access accurate information, and be treated with dignity and understanding. The document also advocates for regular communication with healthcare providers, emotional support, and the right to privacy. Overall, it aims to empower children and their families, promoting a healthcare experience that is patient-centered, respectful, and supportive of their unique needs and rights.