Bardet-Biedl Syndrome Support Group

The Bardet-Biedl Syndrome Support Group is an organization dedicated to helping individuals and families affected by Bardet-Biedl Syndrome (BBS), a rare genetic disorder. BBS can cause a variety of health issues, including vision loss, obesity, kidney problems, extra fingers or toes, and learning difficulties. The support group provides resources, information, and emotional support to improve quality of life. They also promote awareness, research, and connection among affected families to share experiences and advocate for better healthcare and treatment options.